Wednesday, October 22, 2008

To the doctors we go...

Yesterday, we took Brooklyn to the gastroenterologist in Dallas. The visit was fine. Dr. R said that all of Brooklyn's biopsies came back normal. He said that what he was looking for with the biopsies were any abnormal tissues, inflammations, or allergies. So no problems there in her tummy or esophagus. He said that he talked to Dr. G2 after Brooklyn's bronchoscopy and endoscopy Friday and that they wanted to take her off of Reglan and put her on Bethanechol. Dr. R said that it could help with her reflux and also strengthen her airway. He gave us the prescription for it, but we haven't gone to fill it yet. Does anybody know anything about this med? I read tonight that it is an older drug that really isn't used anymore because there are others that are more effective. I also read that it hasn't been studied in babies and children. Hmmmm.

The part of yesterday's appointment that really sucked was that Brooklyn weighed 12 pounds, 7 ounces. I was really worried when the nurse told me that, so she weighed her twice. The nurse and the doctor both did the grams to pounds calculation for me. I just thought there was no way that she could weigh that little. She was 13 pounds, 2 ounces on October 10 at her pre-op appointment. She was 13 pounds even at Dr. A's on October 6. Now I am really scared that she is losing weight again, and that's an awful lot for her to lose. I honestly don't know what she weighed at her procedure on Friday. I've noticed that a lot of these nurses get all confused translating grams to pounds. The nurse that weighed her Friday said that she was 12.8 pounds. When I showed concern, she tapped some more numbers into her calculator and then said, no, she was 13.6. That's quite a difference. I meant to ask one of the doctors about it on Friday but with the stress and worry of all that was going on, I forgot to.

Brooklyn goes today to see her cardiologist and then to see her pediatrician to get her first Synagis injection. I am going to have them both weigh her and I really, really hope that she hasn't lost as much weight as Dr. R's scale showed. I'm also hoping that Brooklyn's cardiologist will tell us that her heart murmur (a ventricular septal defect) has corrected itself. It has been 6 months since we last saw this doctor, and it would be nice if we could have one less specialist for our baby!

7 comments:

MrsSpock said...

I'm not familiar with that drug (I'm not a peds nurse). Here, however, is a site where you can check the conversion yourself quickly:

http://www.onlineconversion.com/weight_common.htm

And another:
http://www.wikihow.com/Convert-Grams-Into-Pounds

Hope said...

I'd ask the pharmacist when you drop the script off. Tell them of your concerns. I am having a "blonde" day, why is Brooklyn seeing a cardiologist? I probably know, but it slipped my mind. I know Ava has to see one for an ECHO due to LM, so I'm wondering if Brooklyn does too.

I also have to say you are doing a wonderful job with all these problems being thrown at your baby. Hang in there. It has to get better, right?

Liz said...

Just curious--is she being weighed in the same manner on the same scale each time? I mean, my pedi always made us change the diaper right before a weigh-in (to make sure you're not weighing a wet diaper that might add a few ounces) and we'd use the same scale each time to make sure you get a consistent weight. Maybe something like that made a difference?

Nickname unavailable said...

Im glad all is going well and i will be praying for the best for you and your daughter today, best wishes

Amanda said...

Liz, we always have to do her "naked weight" at all the doctors.

Sam said...

I had a conversion issue when I was pregnant with Chicken. The stupid nurse converted my weight incorrectly which led to an emergency ultrasound appointment because the stupid doctor thought I had lost weight. It was horrible, I feel your pain.

Carrie27 said...

I hope that your appointment went well and that you heard some good news!

All photos on this site are copyrighted. Please do not copy, download, or reproduce them without permission.