Monday, August 18, 2008

A not-so-relaxing weekend

This pic is of my lovely little Baby Bear all ready for bed! She has to sleep upright in her car seat due to her reflux and tracheomalacia.

On Friday, I finally got the referral for Brooklyn to see the pediatric gastroenterologist. The I called the gastroenterology office at Children's Medical Center and was told that Brooklyn could see a nurse practitioner on September 8, a doctor on September 18, or the doctor that her pulmonologist actually wanted her to see in late October.

"But she's supposed to see Dr. R. And she's a baby...and she's not gaining weight. She can't wait 2 months."

"Then you need to get her doctor to call and say that he needs her worked in sooner."
Unfortunately, both Brooklyn's pediatrician and her pulmonologist were on vacation. Lovely. I am so tired of the way all this medical stuff works. I obviously have openings, you just won't take my word that Brooklyn needs to be seen sooner. Ugh. Frustrating.

Saturday, my mom, Brooklyn, and I were going to go shopping. Tax-free weekend, woohoo! I laid Brooklyn down to change her diaper when we were about to leave. She vomited and ended up aspirating. It went up her nose and she also inhaled some of it. Her breathing turned all rattly and she was making these weird groaning noises. I called a nurse and was told to keep her upright for a couple of hours until she could clear it out. She was fine after less than an hour, but we ended up just staying at home.

Then, about midnight, Brooklyn started screaming and crying inconsolably. I had never heard her screams sound that sounded like she was gargling. She was also coughing a lot. I started panicking and called my hubby. He told me to call our pediatrician's 24-hour nurse line. While I waited for them to call me back, Brooklyn finally calmed down. I laid her across my lap, face down, and rubbed her back in case she needed to spit anything up/out. She kept making this pitiful sad noise. The nurse called me after about 10 minutes. She said that when she heard Brooklyn on my message, she was going to tell me to take her to the emergency room, but since Brooklyn wasn't screaming and making the gargling noise anymore, she told me to stay at home and keep an eye on her.

Brooklyn was making the same groaning noise and coughing last night. She also spit up a lot. So I don't know what's going on. Needless to say, I didn't sleep a whole lot this weekend.

I just got off the phone with Dr. A's nurse and we are taking her to see him at 4:15 today. Hopefully they will be able to tell me what's wrong!


Jonathon said...

She's so beautiful. I hope you can get worked into the doctor sooner. I just want her to get better!

Tara @

Kate said...

I am so sorry! Poor little thing.

Cibele said...

OMG, she is so gorgeous... I hope she feels better soon. Hugs my friend, be strong, it will get better

Emily J. said...

Hi Amanda,
Just randomly looking through blogs and I stumbled on yours. I'm so sorry about your baby girl. I have 3 myself, 2 healthy and one 3 month old girl with severe heart problems and a genetic disorder. I just know how those unbearable nights are and I thought I could lend some "mommy" advice. It sounded like your little girl might have acid reflux or some sort of allergy to formula or breast milk. I've dealt with that with two of my babies. I hope she gets better.
Stay Positive,
Emily J.

Sam said...

I'm sorry your weekend sucked. Wouldn't it be nice if all weekends were about hookers and blow? That's what I'm wishing for, along with a super cute baby like Brooklyn.

Carrie27 said...

Adorable as always.

I had some of the same nights you described with my daugther. I would run into her room and find that she had refluxed in her sleep. I don't want to go back to those days, and I pray my next two don't have the same problems.

I hope that you are able to get your doctor to help you get an earlier appointment.

And Baby Makes Three said...

Love those eyes!! Don't you wish you could take all their pain away and give it to yourself??? I pray that these doctors can figure something out for your little Angel. And thanks for the input on the in-law feels so good to know that I'm not alone on this! Vent anytime!

Beth & Steven said...

Brooklyn is gorgeous!!!
I'm so sorry you're going through all of this. Adam also had terrible reflux until he was about 6.5 months old. It was such a difficult time. Hopefully you'll be able to see the GI soon and get some good medical care for sweet little Brooklyn. You're in my thoughts.

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