I just received a call informing me that Brooklyn has been denied for her Synagis shots for RSV this year.
Apparently, our insurance changed its' criteria this summer and decided that babies with "congenital anomalies" would only be approved for Synagis during their first 12 months of life, regardless of how long those congenital anomalies continue to cause them problems.
I am so upset that I can't quit crying. I am ready to rip my hair out from the frustration. I have been jumping through hoops trying to get my HIGH-RISK daughter an H1N1 vaccination for a month now, with absolutely no success. No one has them. Not here, not Dallas. My only offer has been to give her one with thimerosol (mercury) in it. I think not. We've already had our autism scare and are dealing with delays as it is. I thought for sure when I took Brooklyn to see one of her specialists at Children's Medical that they would have the vaccinations. Nope.
I am absolutely terrified. Every day brings more news stories about the virus, more children dying. Every time a local child has died, the media has made a big deal out of stressing that the child "had a compromised respiratory system." I know why they do it. It's supposed to comfort parents of healthy children, and that's all well and good, but what about us parents of babies and children who do have those "compromised respiratory systems." Thanks for adding to the panic and anxiety and fear we already had.
I'm becoming more and more of a hermit with Brooklyn with each passing week. We don't go to anyone else's house. Birthday parties? I think not. Anything indoors with multiple people, I don't want her there. Stores, malls, restuarants, I am freaked out. I don't want to take her anywhere anymore. I'm just too scared. My anxiety level is ridiculous. Outdoor things seem less threatening to me. We took her to the pumpkin patch two weeks ago, but I didn't want her to touch anything. We went to the zoo on Halloween, and I was alright most of the time, but when we went in the penguin house, where it was warm and humid and crowded and seemed like a germ breeding ground, I wanted Brooklyn out of there as quickly as possible. I make up excuses why I can't go places with my friends. We are quickly becoming prisoners in our own home.
Can someone please give my little girl a break? I just want her protected from all of these horrible things going around.This doesn't seem like too much to ask.
The Synagis coordinator said that she is going to try to get Brooklyn's pulmonologist to appeal the ruling. So all we can do at this point is hope and pray for a positive outcome.