tag:blogger.com,1999:blog-7505095119232307325.post399429000696625155..comments2023-04-26T00:27:12.710-05:00Comments on Learning to Breathe: When it rains....Amandahttp://www.blogger.com/profile/09319187009235224171noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7505095119232307325.post-12522762614470726422008-09-12T19:29:00.000-05:002008-09-12T19:29:00.000-05:00I am so sorry. I'm praying for you guys.I am so sorry. I'm praying for you guys.Katehttps://www.blogger.com/profile/17149755334990646369noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-32859355312802607212008-09-12T14:05:00.000-05:002008-09-12T14:05:00.000-05:00I am so sorry, I will say a prayer for your family...I am so sorry, I will say a prayer for your family and continue thinking of you. Hang in there!Unknownhttps://www.blogger.com/profile/13367488708659286364noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-45327421797540900392008-09-11T23:55:00.000-05:002008-09-11T23:55:00.000-05:00I wish I had the magic words to "fix" ev...I wish I had the magic words to "fix" everything. Of course I don't though. I just want to tell you that Larry & I have been there, done that.....and while it wasn't easy at the time & the whole world sucked dirt & left us feeling like we'd been stomped on, we did survive. And what it all boils down to is -- God is still on the throne. He's still taking care of our every need. And He's watching over you too. I know it's easier said than done, but "try not to worry". I love ya girl!Lizhttps://www.blogger.com/profile/01606570803094936934noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-16925907996655924032008-09-11T08:04:00.000-05:002008-09-11T08:04:00.000-05:00I'm sorry! I feel your pain, really. I had to take...I'm sorry! I feel your pain, really. I had to take some time off school. We were told to look into specialized "babysitters", which are respiratory therapists and/or highly trained people that know how to handle meds and babies that live in resp. distress every single day, like Brooklyn and Ava! Your insurance may pay for it. I know we are so terrified of germs right now. <BR/><BR/>Does Brooklyn have apnea, blue spells or head bobbing? Has her doctors talked about home O2? I'm also curious why she was never monitored at home or had a nurse come out to check on her? They'd get alot of info if she had been on monitors (ie apnea, resp rate, bradys). For her to be so tiny and have the problems you write about, the doctors seem so lax with her. I'd be on their asses all the time. It's hard being our babies' voice, but if we don't advocate, who will?<BR/><BR/>((Hugs!))<BR/>It will get better!Hopehttps://www.blogger.com/profile/08185169858979564182noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-22103987176840231952008-09-10T22:21:00.000-05:002008-09-10T22:21:00.000-05:00I am so sorry. I totally understand your situatio...I am so sorry. I totally understand your situation. I go to school full time and have my schedule worked out so that Avani's dad watches her when I can't and visa versa. Avani can't attend day care either, and I don't trust anyone to watch her. To make matters worst we applied for a nurse through her medicaid program and got denied, reason said was, "no medical need", are they kidding!!!!<BR/>I know that your hundreds of miles away, but just know that from mother of a sick baby to another, you will always have a comrade here in San Antonio. I know how stressful it can be. I wish you the best, everything happens for a reason. We have to believe it, or at least I do. I keep questioning God why is my baby so sick. Maybe there is some higher plan that your husband will wined up being able to spend more time with Brooklyn on his new shift. Maybe, God wants to make things just a bit harder to remind you it can always be worst. I don't know. Just be thankful that it was only a decrease in pay and not a decrease in Brooklyn's health. I know that you know that, all mother's have that thought in their heart when things are bad. Just sometimes someone else needs to say it out-loud.Emily G.https://www.blogger.com/profile/05286056011390570952noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-7594204637009462082008-09-10T21:06:00.000-05:002008-09-10T21:06:00.000-05:00That is awful. I am so sorry. HUGSThat is awful. I am so sorry. HUGSCibelehttps://www.blogger.com/profile/02361386515177047271noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-45412366953549928032008-09-10T18:58:00.000-05:002008-09-10T18:58:00.000-05:00Bummer. What a pisser. Thinking of you....samBummer. What a pisser. Thinking of you....samedie & ellahttps://www.blogger.com/profile/16263126306535576474noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-81899508498928856082008-09-10T16:59:00.000-05:002008-09-10T16:59:00.000-05:00Sometimes life just won't cut you a break. Man th...Sometimes life just won't cut you a break. Man that sucks, I am sorry. Sometimes all you can do is take a deep breath, look into that huge smiling baby face and just say "Suck it world!"Jennifer Whttps://www.blogger.com/profile/02774629777975346838noreply@blogger.comtag:blogger.com,1999:blog-7505095119232307325.post-75054604183689969122008-09-10T14:44:00.000-05:002008-09-10T14:44:00.000-05:00Oh crap. So sorry.Oh crap. So sorry.MrsSpockhttps://www.blogger.com/profile/10792687516201324640noreply@blogger.com